Amyotrophic Lateral SclerosiseBook - 2005
This guide advises patients of ALS and their families how to ameliorate symptoms of the disease and to find support agencies and organizations. From their extensive experience with ALS patients, Miller, Gelinas and O'Connor, all from the Forbes Norris MDA/ALS Research Center, are able to address specific concerns and their solutions. They discuss the physical and psychological symptoms and their treatments, as well as the benefits of receiving care in a ALS center. They conclude with a chapter on working with insurance companies. Annotation ©2004 Book News, Inc., Portland, OR (booknews.com)
ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS.
In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families.
Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.